Workplan
The EUBIROD Approach
EUBIROD will actively involve national/regional networks in the collection of diabetes data. The project includes the following activities:
- Data collection: ensuring wide adoption of BIRO while taking into account privacy/security issues
- Epidemiological analysis: adding new functionalities for the delivery of EU standardized indicators
- Technological transfer: providing a toolbox to facilitate the connection process and to remove any obstacles in the use of the system
- Dissemination: training partners “on field” through the activity of a “BIRO academy”
- Evaluation: reviewing major achievements through international experts who will use objective indicators measuring the degree of completeness and the information content of statistical reports
Methods
Methods involved the use of advanced statistical routines for the estimation of diabetes indicators using only aggregated data that were regularly sent
by participating registers towards a central server. Modern epidemiological techniques for risk adjustment have been used to compute standardized diabetes
indicators and differences of observed minus expected, providing a snapshot of the variability across the continent. Progressive extension of the Register
has been facilitated through the BIRO Academy, a dissemination activity that included the production of e-learning tools e.g. multimedia and presentations
from the Consortium, as well as material for residential courses. Access to all materials produced by the Consortium has been provided through registered access
at the project website.
Planned Results
At the end of 36 months, EUBIROD has ensured that:
- the BIRO system was up and running in at least 20 States, including EU Member States, Acceding/Candidate Countries, and EFTA Countries;
- a common framework for the use of standardized measurements has been adopted and well understood through specialized training;
- annual EU BIRO Diabetes Reports have been produced as a prototype for the European Commission.
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